Monique M.'s Essay

Top Lessons Learned Living with Cystic Fibrosis!

I have learned the importance of taking care of myself before and after transplant in order to stay healthy. It is easy for me to push and challenge myself, to endure, keep going, never quit or give up, despite constant adjustments. As my health deteriorated, I had to learn to say no and rest.

Being hospitalized many times, I realized that other were hurting much more than me and, at times, losing their lives. I have learned the meaning of ‘for better or for worse’, without being married, in having C.F., loving God and those around me, no matter how I’m feeling.

Even doing all I could do and following Doctors’ orders, ultimately, only God knows when my last breath will be. I choose to be thankful for every opportunity I have and will experience, whether good or bad. Had I not known how difficult it could be to breathe and walk, might I be taking it for granted right now? Would I be making the most of every moment and step I get to take? I want to make the most of what I have been given and not feel sorry for myself!

At 31 years, I want to enjoy those around me and give my absolute best! I have learned unconditional, never-ending love from family and friends. Being healthy, even with a disease, is a choice. Pursuing dreams while having a disease, is a choice and I am excited to be alive, loving and learning all I can!