Elaine H.'s Essay

To most people Cystic Fibrosis is considered a tragedy and a burden. I agree very much that Cystic Fibrosis can at most times be those things, but having Cystic Fibrosis has taught me many things that I otherwise would not have learned about life.

Having Cystic Fibrosis has taught me the effects fatal diseases have on friends, families, and strangers. Through this lesson I have realized how many people care and I have realized that even though I am the one coughing and going in for lung clean outs, the burden is not just on me, but my family and friends as well.

For many years I have seen my mother in tears returning home from hospital visits. I have heard many stories where she would cry herself to sleep from her fear of my twin sister and me getting even sicker. My mother and other relatives have always been there for me. The relationships I share outside of family mean just as much. I have had dozens of friends make the commute from across Massachusetts to visit me in hospitals. I have even had a boyfriend stay every single night at my bed side. The strangers I come in contact with who promise to say a prayer for me at night make me feel just as loved. I have learned how many people actually care about me. Cystic Fibrosis has taught me that no matter the circumstance I am not alone.